Since 1984, the Reflex Sympathetic Dystrophy Association has been educating, providing hope and support to individuals that suffer from CRPS/RSD, as well as pursue treatment and cure research. From their website, RSDSA “Conducts conferences throughout the United States to provide the latest knowledge on treatment and research; connects individuals with CRPS/RSD with each other, as too often individuals with CRPS/RSD have never met someone else with the same disorder; and provides hope and tools for now and the future.”
RSDSA puts on conferences called Integrated Solutions to CRPS which bring different stakeholders together to work on innovative solutions to managing CRPS, as well as opportunities to network and get to know your RSDSA community. They also host a ton of other fundraising and community events that you can learn about here.
While you’re on their site, make sure to check out their Medical page (for research, videos, treatments, etc), their community area and their Living with CRPS/RSD to learn more ways to manage condition. If you have any questions, feel free to contact their friendly staff here.